iconAbout RettSearch

RettSearch is an international, multi-center collaborative network of clinically-oriented researchers. Its mission is to promote the development of new therapeutic approaches for Rett syndrome (RTT) by collecting information and pursuing research in areas of relevance to clinical trials in RTT. Under the leadership of the Executive Committee - Sarojini Budden, M.D., FRCPC; John Christodoulou, , F.R.A.C.P., Ph.D., A.R.C.P.A..; Daniel Glaze, M.D.; Helen Leonard, M.B.Ch.B., M.P.H.;Jeff Neul, M.D.; Carolyn Schanen, M.D.; Francesca Mari, M.D., Ph.D; and Walter Kaufmann, M.D. (Chair) - members are grouped into committees or "working groups," each with a specific theme and task. Clinical researchers interested in applying for membership should send a current CV to the RettSearch Coordinator. Learn more about our History/Mission and Expected Outcomes.


InterRett InterRett: The Value
of International Data

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The IRSF MECP2 Variation Database

RettBASE aims to provide a list of all published MECP2 gene variations (including polymorphisms), whereby unpublished data can be submitted and made available to all researchers. Learn more...

iconNews & Publications

Highlighted article: Rett networked database: An integrated clinical and genetic network of rett syndrome databases. Read full abstract...
Highlighted article: Early speech-language development in females with Rett syndrome: focusing on the preserved speech variant. Read full abstract...

iconLinks to NIH Funding Resources

iconAre you a RettSearch member looking for funding?

Consider applying for a RettSearch microgrant!

topTopCall (857) 218-5532 to participate and contribute!